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DTSTART;TZID=Europe/Paris:20230208T170000
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DTSTAMP:20260420T194505
CREATED:20230127T080022Z
LAST-MODIFIED:20230127T080022Z
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SUMMARY:Webinar: Biobanks and scientific research - scientific opportunities and challenges for privacy
DESCRIPTION:What regulatory\, privacy\, and secondary use aspects due researchers need to consider when using patient data for research purposes? \nIn this online panel discussion (held in Italian)\, speakers Dr. Ilaria Anna Colussi (BBMRI-ERIC – Data Protection Specialist)\, Laura Liguori (Portolano Cavallo Partner) and Elisa Stefanini (Portolano Cavallo Partner) address the main challenges researchers are facing regarding sample biology on the European and Italian levels. \nDate: 8 February 2023\, 5 pm (CET) \nRegister here \nShare via Twitter \nShare via LinkedIn
URL:https://dev2.bbmri-eric.eu/events/webinar-biobanks-and-scientific-research-scientific-opportunities-and-challenges-for-privacy/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://dev2.bbmri-eric.eu/wp-content/uploads/Ilaria_Colussi_8Feb2023-e1674731875551.png
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DTSTART;TZID=Europe/London:20230209T140000
DTEND;TZID=Europe/London:20230209T150000
DTSTAMP:20260420T194505
CREATED:20230127T075940Z
LAST-MODIFIED:20230127T075940Z
UID:67524-1675951200-1675954800@dev2.bbmri-eric.eu
SUMMARY:Webinar: The case of data reuse - ethical\, legal\, and societal issues in international genomic data access and sharing
DESCRIPTION:Health data collected in cohort studies help researchers generate knowledge generation and advance biomedical research. But what happens when these data are used for something other than the initial purpose? \nIn this webinar\, BBMRI social scientist Dr. Melanie Goisauf and health lawyer Emmanuelle Rial-Sebbag address  ethical\, legal\, and societal questions regarding the sensitivity of genomic data sourced from vulnerable and ethnic groups\, such as African genetic data and material. \nDate: 9 February 2023\, 2-3 p.m. (UTC) \nOnline via Zoom \nRegistration link \nThe speakers will address challenges associated with the reuse of health/genomic data in CINECA from the ELSI perspective and the FAIR principles\, highlighting GDPR provisions and their interpretations\, national laws\, relevant literature\, and outcomes of recent stakeholder engagement workshops.
URL:https://dev2.bbmri-eric.eu/events/webinar-the-case-of-data-reuse-ethical-legal-and-societal-issues-in-international-genomic-data-access-and-sharing/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://dev2.bbmri-eric.eu/wp-content/uploads/Webinar_9Feb2023.png
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