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BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230531T140000
DTEND;TZID=Europe/Paris:20230531T153000
DTSTAMP:20260419T085317
CREATED:20230510T135734Z
LAST-MODIFIED:20230510T135836Z
UID:70369-1685541600-1685547000@dev2.bbmri-eric.eu
SUMMARY:BBMRI-ERIC ELSI Dialogues Webinar: Introduction to the Belgian Biobank Legislation - A Piece of the Puzzle in the Complicated EU Regulatory Landscape
DESCRIPTION:Biobank legislation is not harmonised at the European Union level\, and the Member States have taken considerably divergent approaches in how they regulate the field. Whereas some countries do not have specific regulations\, others have adopted complex biobank laws. \nThis webinar aims to present the unique legal framework for biobanking that is currently in place in Belgium. The Belgian Biobank law was first adopted in 2008\, entered into force in 2018 and underwent an important reform in 2022. Moreover\, the law is complemented by an essential piece of self-regulation\, namely the Compendium on biobanks issued by the Federal Agency on Medicine Products and Health. The interplay with relevant data protection rules will also be the focus of our discussion. \nJoin us on 31 May at 14:00 CEST. Register online. \n\nModerator: Ilaria Colussi  \n\n\nSpeakers: Janos Meszaros\, Teodora Lalova-Spinks\, Introduction by Prof. Isabelle Huys  \n\nThis webinar has received funding from the European Union’s Horizon Europe research and innovation programme under the project canSERV – providing cutting edge cancer research services across Europe (grant agreement number 101058620). \n 
URL:https://dev2.bbmri-eric.eu/events/bbmri-eric-elsi-dialogues-webinar-introduction-to-the-belgian-biobank-legislation-a-piece-of-the-puzzle-in-the-complicated-eu-regulatory-landscape/
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/png:https://dev2.bbmri-eric.eu/wp-content/uploads/ELSI-Dialogues-Webinar-e1683727106562.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230209T140000
DTEND;TZID=Europe/London:20230209T150000
DTSTAMP:20260419T085317
CREATED:20230127T075940Z
LAST-MODIFIED:20230127T075940Z
UID:67524-1675951200-1675954800@dev2.bbmri-eric.eu
SUMMARY:Webinar: The case of data reuse - ethical\, legal\, and societal issues in international genomic data access and sharing
DESCRIPTION:Health data collected in cohort studies help researchers generate knowledge generation and advance biomedical research. But what happens when these data are used for something other than the initial purpose? \nIn this webinar\, BBMRI social scientist Dr. Melanie Goisauf and health lawyer Emmanuelle Rial-Sebbag address  ethical\, legal\, and societal questions regarding the sensitivity of genomic data sourced from vulnerable and ethnic groups\, such as African genetic data and material. \nDate: 9 February 2023\, 2-3 p.m. (UTC) \nOnline via Zoom \nRegistration link \nThe speakers will address challenges associated with the reuse of health/genomic data in CINECA from the ELSI perspective and the FAIR principles\, highlighting GDPR provisions and their interpretations\, national laws\, relevant literature\, and outcomes of recent stakeholder engagement workshops.
URL:https://dev2.bbmri-eric.eu/events/webinar-the-case-of-data-reuse-ethical-legal-and-societal-issues-in-international-genomic-data-access-and-sharing/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://dev2.bbmri-eric.eu/wp-content/uploads/Webinar_9Feb2023.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20230208T170000
DTEND;TZID=Europe/Paris:20230208T180000
DTSTAMP:20260419T085317
CREATED:20230127T080022Z
LAST-MODIFIED:20230127T080022Z
UID:67527-1675875600-1675879200@dev2.bbmri-eric.eu
SUMMARY:Webinar: Biobanks and scientific research - scientific opportunities and challenges for privacy
DESCRIPTION:What regulatory\, privacy\, and secondary use aspects due researchers need to consider when using patient data for research purposes? \nIn this online panel discussion (held in Italian)\, speakers Dr. Ilaria Anna Colussi (BBMRI-ERIC – Data Protection Specialist)\, Laura Liguori (Portolano Cavallo Partner) and Elisa Stefanini (Portolano Cavallo Partner) address the main challenges researchers are facing regarding sample biology on the European and Italian levels. \nDate: 8 February 2023\, 5 pm (CET) \nRegister here \nShare via Twitter \nShare via LinkedIn
URL:https://dev2.bbmri-eric.eu/events/webinar-biobanks-and-scientific-research-scientific-opportunities-and-challenges-for-privacy/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://dev2.bbmri-eric.eu/wp-content/uploads/Ilaria_Colussi_8Feb2023-e1674731875551.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20221116T150000
DTEND;TZID=Europe/Paris:20221116T160000
DTSTAMP:20260419T085317
CREATED:20221013T123703Z
LAST-MODIFIED:20221021T074452Z
UID:63864-1668610800-1668614400@dev2.bbmri-eric.eu
SUMMARY:Webinar: Visualizing the Complexity of Sex Determination
DESCRIPTION:Visualizing the Complexity of Sex Determination\, with Amanda Montañez \nA new installment of the “Sex and Gender in Biomedical Research” webinar series\, will take place on Wednesday\, November 16th\, at 15h (CEST). The title of this webinar is  “Visualizing the Complexity of Sex Determination”. \nThe speaker\, Amanda Montañez\, describes her session as follows: \nAt Scientific American\, we communicate the latest and most important information about science\, health\, technology\, the environment\, and society to the public. We often use information graphics to help illuminate complex ideas that are hard to explain fully through words alone. A few years ago\, as part of a special issue on sex and gender\, I led the development of a graphic on the spectrum of biological sex\, a fascinating topic that I had not seen visualized before and turned out to be even more complex than I had imagined. In this talk I will explain the process of how the graphic was developed\, what I learned\, and how this project fits into my work as a graphics editor at Scientific American. \nRegister here: https://cesnet.zoom.us/webinar/register/WN_6lcofwfYRGmDFhOh0LDgoA \nYou can check the graphic here: https://www.scientificamerican.com/article/beyond-xx-and-xy-the-extraordinary-complexity-of-sex-determination/ \nPitch Interactive and Amanda Montañez; Source: Research by Amanda Hobbs; Expert review by Amy Wisniewski University of Oklahoma Health Sciences Center​ \n 
URL:https://dev2.bbmri-eric.eu/events/sex-and-gender-in-biomedical-research/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://dev2.bbmri-eric.eu/wp-content/uploads/ELSI_gender-webinar-exploration_website.jpg
ORGANIZER;CN="BBMRI-ERIC":MAILTO:contact@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20221115T150000
DTEND;TZID=Europe/Paris:20221115T160000
DTSTAMP:20260419T085317
CREATED:20221019T083118Z
LAST-MODIFIED:20221107T105314Z
UID:64084-1668524400-1668528000@dev2.bbmri-eric.eu
SUMMARY:Ethics of AI in Imaging: Ethical and Societal Implications
DESCRIPTION:Speakers: Melanie Goisauf and Mónica Cano Abadía (BBMRI-ERIC) \nArtificial Intelligence (AI) applications in medicine are hoped to improve healthcare and to advance health equity. While the technology carries the potential to improve health services\, the ethical and societal implications need to be carefully considered to avoid harmful consequences for individuals and groups\, especially for the most vulnerable. It is therefore inevitable to identify what types of ethical issues are raised by AI\, and to analyse how these issues are tackled in biomedical research. This webinar gives an overview of the results of a comprehensive and systematic review of academic literature as well as workshop outcomes. We will problematise approaches such as ‘trustworthy AI’ and ‘explainable AI’ that shape the ethics discourse on AI. The webinar concludes with a reflection on the topics identified that shape the understanding of ‘Ethics of AI’ and the gaps in the discourse.  \nRegister here: https://cesnet.zoom.us/webinar/register/WN_u_wq99pSTfm7Ql3PfXdnFQ \nThis webinar is funded within BIG PICTURE\, projects that have received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 945358. 
URL:https://dev2.bbmri-eric.eu/events/ethics-of-ai-in-imaging-ethical-and-societal-implications/
LOCATION:Online
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/jpeg:https://dev2.bbmri-eric.eu/wp-content/uploads/Webinar-intro-slides-e1667818388651.jpg
ORGANIZER;CN="BBMRI-ERIC":MAILTO:contact@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220712T100000
DTEND;TZID=Europe/Paris:20220712T113000
DTSTAMP:20260419T085317
CREATED:20220708T070941Z
LAST-MODIFIED:20220708T070941Z
UID:59656-1657620000-1657625400@dev2.bbmri-eric.eu
SUMMARY:ISIDORe Information Webinar
DESCRIPTION:The ISIDORe coordination team is launching the first in a series of webinars to provide information about ISIDORe initiative\, its open calls for proposals dedicated to SARS-CoV-2/COVID-19 and Monkeypox virus\, and how to apply to services. \nThe first webinar will be held on 12th July 2022\, 10:00-11:30 AM CEST. \nPlease register here for the event if relevant\, and disseminate the information through your communication channels. You can find more information on the webinar on the ISIDORe website.
URL:https://dev2.bbmri-eric.eu/events/isidore-information-webinar/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://dev2.bbmri-eric.eu/wp-content/uploads/Isidore_webinar_12July.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220712T100000
DTEND;TZID=Europe/Paris:20220712T100000
DTSTAMP:20260419T085317
CREATED:20220707T134830Z
LAST-MODIFIED:20220707T135006Z
UID:59617-1657620000-1657620000@dev2.bbmri-eric.eu
SUMMARY:Webinar: Advancing Research on Epidemic-Prone Diseases
DESCRIPTION:The ISIDORe consortium has recently launched its first call to support research on SARS-CoV-2 and COVID-19. It provides free of charge access to more than 300 services from ISIDORe’s integrated portfolio of cutting-edge research services dedicated to epidemic-prone disease research. \nIt will follow in coming weeks with a new access call dedicated to the Monkeypox virus. \nRead more…
URL:https://dev2.bbmri-eric.eu/events/webinar-advancing-research-on-epidemic-prone-diseases/
CATEGORIES:Projects,Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220524T140000
DTEND;TZID=Europe/Paris:20220524T150000
DTSTAMP:20260419T085317
CREATED:20220502T142910Z
LAST-MODIFIED:20220502T143959Z
UID:56969-1653400800-1653404400@dev2.bbmri-eric.eu
SUMMARY:ConcePTION European Breast Milk Collection: Supporting research on medicine safety in breastfeeding
DESCRIPTION:Join our webinar presenting the ConcePTION European Breast Milk Collection. The Collection is supported by both public and private partners\, including the Biobanking and BioMolecular resources Research Infrastructure\, BBMRI-ERIC.
URL:https://dev2.bbmri-eric.eu/events/conception-european-breast-milk-collection-supporting-research-on-medicine-safety-in-breastfeeding/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220329T100000
DTEND;TZID=Europe/Paris:20220329T111500
DTSTAMP:20260419T085317
CREATED:20220302T143745Z
LAST-MODIFIED:20220510T101146Z
UID:55229-1648548000-1648552500@dev2.bbmri-eric.eu
SUMMARY:BBMRI.QM Newsroom Continues in 2022
DESCRIPTION:The 1st BBMRI QM Newsroom will take place 29 March from 10:00 to 11:15 am. We will welcome four speakers and guests and take time to discuss quality-related issues in biobanking\, biomedical research and development that arise in the community. \nThe online meeting will follow the agenda below:\nQ-UICK \n\nBBMRI.QM team\, BBMRI-ERIC\n\nQ-UIZ \n\nBBMRI.no – Anne Jorunn Vikdal\, Project Coordinator (Hunt Biobank\, Norway)\nBBMRI.fi – Aulikki Santavuori\, Quality Manager (Auria Biobank\, Finland)\nBBMRI.cz – Jana Gottwaldova\, Quality Manager (Masaryk Memorial Cancer Institute\, Czech Republic)\n\nQ-UEST \n\nGuest: Martin Golebiewski\, ISO/TC 276 – WG5 Convener\n\nQ-CHANGE \nWe look forward to your active participation in the discussion. \n  \nAbout BBMRI.QM Newsroom \n“Get insights from the outside” – that is the motto for the consultation hours on quality-related topics in the field of biobanking and biomedical research and development. Sessions include an overview of current developments in quality management\, information about National Nodes (3 Nodes\, 3 minutes\, 3 slides)\, a guest speaker\, and exchange of ideas. Find more information here.
URL:https://dev2.bbmri-eric.eu/events/5th-bbmri-qm-newsroom/
LOCATION:Online
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/jpeg:https://dev2.bbmri-eric.eu/wp-content/uploads/AdobeStock_268062196_Newsroom_web-scaled-e1669298651879.jpeg
ORGANIZER;CN="BBMRI.QM%20Newsroom":MAILTO:nadja.palko@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20220315T140000
DTEND;TZID=Europe/Paris:20220315T150000
DTSTAMP:20260419T085317
CREATED:20220217T100817Z
LAST-MODIFIED:20220324T091220Z
UID:54812-1647352800-1647356400@dev2.bbmri-eric.eu
SUMMARY:Webinar: EU support to gender equality in research and innovation
DESCRIPTION:Speaker: Jeanne Lenders\, Policy Officer for Gender Equality (European Commission) \nWhat is the EU doing to support gender equality in research and innovation\, and why is it important? We invite you to the new installment of the “ELSI Dialogues on Sex and Gender in Biomedical Research” webinar series. This talk will provide an overview of the strengthened provisions for gender equality in Horizon Europe\, explaining how gender equality plans can become a game changer for structural change at research organizations\, and why integrating the gender dimension in research proposals matters. \nThe webinar will look into the European Commission’s policy background\, results from the latest She Figures 2021 report\, as well as some practical resources for strengthening gender equality at institutional and research level. \nThe webinar is organized by the ELSI Services & Research unit of BBMRI-ERIC and is open to the public\, but is of particular interest to our National Nodes\, fellow research infrastructures and project partners. \n  \nYou can find the recording here.
URL:https://dev2.bbmri-eric.eu/events/webinar-eu-support-to-gender-equality-in-research-and-innovation/
LOCATION:Online
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/png:https://dev2.bbmri-eric.eu/wp-content/uploads/2022_03_ELSI_gender-webinar_Policy-02.png
ORGANIZER;CN="BBMRI-ERIC":MAILTO:contact@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20211214T100000
DTEND;TZID=Europe/Paris:20211214T111500
DTSTAMP:20260419T085317
CREATED:20210818T115346Z
LAST-MODIFIED:20210907T084032Z
UID:48002-1639476000-1639480500@dev2.bbmri-eric.eu
SUMMARY:4th BBMRI.QM Newsroom
DESCRIPTION:Join BBMRI.QM\, our Quality Management team\, for the 4th installation in our Newsroom series. \n  \nAbout BBMRI.QM Newsroom \n“Get insights from the outside” – that is the motto for the consultation hours on quality-related topics in the field of biobanking and biomedical research and development. Sessions include an overview of current developments in quality management\, information about National Nodes (3 Nodes\, 3 minutes\, 3 slides)\, a guest speaker\, and exchange of ideas. Find more information here.
URL:https://dev2.bbmri-eric.eu/events/4th-bbmri-qm-newsroom/
LOCATION:Online
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/jpeg:https://dev2.bbmri-eric.eu/wp-content/uploads/AdobeStock_268062196_Newsroom_web-scaled-e1669298651879.jpeg
ORGANIZER;CN="BBMRI.QM%20Newsroom":MAILTO:nadja.palko@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20211130T170000
DTEND;TZID=Europe/Paris:20211130T190000
DTSTAMP:20260419T085317
CREATED:20211021T115450Z
LAST-MODIFIED:20220315T082242Z
UID:50378-1638291600-1638298800@dev2.bbmri-eric.eu
SUMMARY:“Gendered Innovations”: The Importance of Gender in Biomedical Research
DESCRIPTION:Join BBMRI-ERIC for an exciting 2-hour webinar on gender in biomedical research\, featuring two outstanding speakers. \nPart 1) Gendered Innovations in Biomedicine  \nLonda Schiebinger\nJohn L. Hinds Professor of History of Science\nDirector\, Gendered Innovations in Science\, Health & Medicine\, Engineering\, and Environment\nStanford University \nHow can we harness the creative power of sex\, gender\, and intersectional analysis for discovery and innovation? This talk will discuss this type of analysis in cells\, animal\, and human research. To match the global reach of science and technology\, Gendered Innovations was developed through a collaboration of over 200 experts from across the United States\, Europe\, Canada\, and Asia. Major funders include the European Commission\, the U.S. National Science Foundation\, and Stanford University. \nFor background\, see the following publications: \n\nAI can be Sexist and Racist—It’s Time to Make it Fair Nature\, 559.7714 (2018)\, 324-326;\nSex and Gender Analysis Improves Science and Engineering Nature\, 575.7781 (2019)\, 137-146;\nGendered Innovations 2: How Inclusive Analysis Contributes to Research and Innovation (Luxembourg: Publications Office of the European Union\, 2020)\, and\nEnsuring that Biomedical AI Benefits Diverse Populations eBioMedicine\, 103358 (2021).\n\nFor late-breaking news on research in this area\, join the Gendered Innovations listserv. \n  \nPart 2) Practical considerations for the operationalization of sex- and gender-sensitive research in biomedicine \nSabine Oertelt-Prigione\nChair of gender in primary and transmural care at the Radboud University in Nijmegen\, the Netherlands\nProfessor of sex- and gender-sensitive medicine at the University of Bielefeld\, Germany \nOnce researchers decide to focus on sex and gender in their work\, the next question is: how do you do it? What do you have to consider and how do you start? In this talk we will explore more in depth how sex and gender are currently operationalized in biomedicine. What should be measured during the experiments and what should be reported in the following scientific publication. Using several examples from different biomedical fields\, we will explore practices and formulate recommendations. \nWatch the recording here. \nFor more about ethical\, legal and societal issues in biomedical research\, visit BBMRI-ERIC ELSI Services & Research.
URL:https://dev2.bbmri-eric.eu/events/gendered-innovations-the-importance-of-gender-in-biomedical-research/
LOCATION:Online
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/png:https://dev2.bbmri-eric.eu/wp-content/uploads/Gendered-Innovations-Twitter-1-e1635144004686.png
ORGANIZER;CN="BBMRI-ERIC":MAILTO:contact@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20211117T090000
DTEND;TZID=Europe/Paris:20211117T103000
DTSTAMP:20260419T085317
CREATED:20211112T093101Z
LAST-MODIFIED:20211119T102732Z
UID:51301-1637139600-1637145000@dev2.bbmri-eric.eu
SUMMARY:IC2PerMed :  Launch of the Virtual Round Tables (VRTs) !
DESCRIPTION:“Get to know the European and Chinese landscape in Personalised Medicine-biobanking with special focus on the common intersections data/Ethical\, Legal and Societal Issues (ELSI)/quality” – that is the credo for the 4 upcoming Virtual Round Tables! \n \nWhat should you expect? Our VRTs will present the European and Chinese perspective/challenges and future trends of four very important thematic for Personalised Medicine. These presentations will be linked to the activities of the IC2PerMed’s working groups\, followed by an interactive question and answer session. \nFollow the links below to register to each of the sessions: \nVRT#1: Biobanking – How does biobanking contribute to personalized medicine?  \nWednesday 17. November 2021 \nFrom 9h to 10h30 CET  \nVRT#2: Data – It’s all about data\, isn’t it?  \nWednesday 1. December 2021 \nFrom 9h to 10h30 CET \nVRT#3: ELSI – Four letters – do they matter?  \nWednesday 19. January 2022 \nFrom 9h to 10h30 CET \nVRT#4: Quality – What’s missing when things don’t work as they should?  \nWednesday 16. February 2022 \nFrom 9h to 10h30 CET
URL:https://dev2.bbmri-eric.eu/events/ic2permed-launch-of-the-virtual-round-tables-vrts/
LOCATION:Online
CATEGORIES:BBMRI Events,External Events,Webinar
ORGANIZER;CN="BBMRI-ERIC":MAILTO:contact@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20211029T140000
DTEND;TZID=Europe/Paris:20211029T160000
DTSTAMP:20260419T085317
CREATED:20210920T083330Z
LAST-MODIFIED:20220510T101242Z
UID:49188-1635516000-1635523200@dev2.bbmri-eric.eu
SUMMARY:EUCAN ELSI Webinar: International Data Sharing
DESCRIPTION:Join BBMRI-ERIC and other project partners from the EUCAN ELSI Collaboratory (EUCANCan\, euCanSHare\, CINECA\, iReceptor Plus\, EUCAN-Connect\, ReCoD-ID\, and EuCanImage) for a joint webinar about how fostering stakeholder engagement can improve transparency and accountability in international sharing of health data. \n The first part will include four 15-minute presentations and conclude with a Q&A. The second part will be dedicated to horizon scanning\, providing a space for researchers in the EUCAN ELSI projects to discuss a wide verity of themes concerning the future of international data sharing\, including ongoing barriers to be remover; future research that needs to be conducted; and affirmation of certain already existing frameworks. \nBBMRI-ERIC’s Michaela Th. Mayrhofer will give a talk entitled\, “A focus on the S in ELSI: societal engagement and social aspects of data sharing” \nAll are welcome. \n  \n 
URL:https://dev2.bbmri-eric.eu/events/eucan-elsi-webinar-international-data-sharing/
LOCATION:Online
CATEGORIES:External Events,Webinar
ATTACH;FMTTYPE=image/jpeg:https://dev2.bbmri-eric.eu/wp-content/uploads/2021_10_CINECA-webinar.jpg
ORGANIZER;CN="EUCAN%20ELSI%20Collaboratory":MAILTO:marta.lloret@ebi.ac.uk
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20211014T140000
DTEND;TZID=Europe/Paris:20211014T160000
DTSTAMP:20260419T085317
CREATED:20210830T094046Z
LAST-MODIFIED:20220510T100844Z
UID:48467-1634220000-1634227200@dev2.bbmri-eric.eu
SUMMARY:Online Workshop Day 2: Participant engagement in longitudinal population studies/cohorts
DESCRIPTION:This webinar takes places over 2 days\, for 2 hours each:\nDay 1: October 12th\, 2021. 14:00-16:00h (CEST)\nDay 2: October 14th\, 2021. 14:00-16:00h (CEST)\nYou are welcome to attend either or both sessions! \n  \nDescription: Retaining several generations of participants in longitudinal cohorts and ensuring that the participants continuously contribute with new data and support data sharing\, is challenging. Participants gradually drop out\, do not respond to data collection requests\, or simply lose interest in the study. Young people\, disadvantaged socio-economic groups\, and ethnic minorities are particularly difficult to retain for a long period of time. \nParticipant engagement aims to maintain the interest of participants in the study and encourage their participation and commitment over its lifetime. European cohorts are gradually developing participant engagement strategies including innovative tools for recruitment and informed consent collection\, data collection and ongoing communication with\, and involvement of\, participants. At this digital workshop\, the strategies of key European cohorts will be presented and discussed\, and experiences exchanged. Work conducted to map participant engagement strategies in European cohorts will also be presented. The workshop is jointly organized by BBMRI-ERIC and Biobank Norway. \n  \nAgenda: \nDay 1. October 12th\, 2021. 14:00-16:00 CET. \n  \nDay 2. October 14th\, 2021. 14:00-16:00 CET. \n\n\n\n14:00 \n \nTopic 4: Returning actionable research results to cohort participants \nSpeaker: Shona Kerr\, VIKING GENES\, UK \nShort Q&A\n\n\n14:25\nTopic 5: Engaging with cohorts of young participants   \nSpeaker: Ana Cristina Santos\, Geração 21\, Portugal \nShort Q&A\n\n\n14:50\nTopic 6: Participant engagement in times of pandemic \nSpeaker:  Robin Flaig\, Clare Dolan and Rachel Edwards\, Generation Scotland\, UK \nShort Q&A\n\n\n15:15\nMapping participant engagement in European cohorts  \nSpeaker: Isabelle Budin-Ljøsne\, Norwegian Institute of Public Health and Biobank Norway\, Norway\n\n\n15:35\nQ&A + Exchange\n\n\n16:00\nClosure\n\n\n\n  \nWebsites of cohorts \nALSPAC: http://www.bristol.ac.uk/alspac/ \nBorn in Bradford: https://borninbradford.nhs.uk/ \nNINFEA: https://www.progettoninfea.it/index_en \nVIKING GENES: https://www.ed.ac.uk/viking \nGeração 21: https://www.geracao21.com/en/ \nGeneration Scotland: https://www.ed.ac.uk/generation-scotland \n\nView the recordings for Day 1 and Day 2.
URL:https://dev2.bbmri-eric.eu/events/online-workshop-day-2-participant-engagement-in-longitudinal-population-studies-cohorts/
LOCATION:Online
CATEGORIES:BBMRI Events,Seminar,Webinar
ORGANIZER;CN="BBMRI-ERIC":MAILTO:contact@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20211012T140000
DTEND;TZID=Europe/Paris:20211012T160000
DTSTAMP:20260419T085317
CREATED:20210830T093825Z
LAST-MODIFIED:20211020T124542Z
UID:48462-1634047200-1634054400@dev2.bbmri-eric.eu
SUMMARY:Online Workshop Day 1: Participant engagement in longitudinal population studies/cohorts
DESCRIPTION:This webinar takes places over 2 days\, for 2 hours each:\nDay 1: October 12th\, 2021. 14:00-16:00h (CEST)\nDay 2: October 14th\, 2021. 14:00-16:00h (CEST)\nYou are welcome to attend either or both sessions! \n  \nDescription: Retaining several generations of participants in longitudinal cohorts and ensuring that the participants continuously contribute with new data and support data sharing\, is challenging. Participants gradually drop out\, do not respond to data collection requests\, or simply lose interest in the study. Young people\, disadvantaged socio-economic groups\, and ethnic minorities are particularly difficult to retain for a long period of time. \nParticipant engagement aims to maintain the interest of participants in the study and encourage their participation and commitment over its lifetime. European cohorts are gradually developing participant engagement strategies including innovative tools for recruitment and informed consent collection\, data collection and ongoing communication with\, and involvement of\, participants. At this digital workshop\, the strategies of key European cohorts will be presented and discussed\, and experiences exchanged. Work conducted to map participant engagement strategies in European cohorts will also be presented. The workshop is jointly organized by BBMRI-ERIC and Biobank Norway. \n  \nAgenda: \nDay 1. October 12th\, 2021. 14:00-16:00 CET.  \n\n\n\n14:00\nWelcome \nIsabelle-Budin Ljøsne (Biobank Norway) \nMónica Cano Abadía (BBMRI-ERIC)\n\n\n14:10\nTopic 1: Recruiting participants across several generations \nSpeaker: Lynn Molloy\, ALSPAC\, UK \nShort Q&A\n\n\n14:35\nTopic 2: Community Engagement / Coproduction and Citizen Science \nSpeaker:  Aamnah Rahman\, Research Fellow and Shahid Islam\, Senior Research Fellow\, Born in Bradford\, UK \nShort Q&A\n\n\n15:00\nTopic 3: Recruiting and engaging participants in a web-based cohort \nSpeaker: Costanza Pizzi\, NINFEA (Nascita e INFanzia: gli Effetti dell’Ambiente)\, Italy \nShort Q&A\n\n\n15:25\nQ&A + Exchange\n\n\n16:00\nClosure\n\n\n\n  \n  \nDay 2. October 14th\, 2021. 14:00-16:00 CET. \n\n\n\n14:00 \n \nTopic 4: Returning actionable research results to cohort participants \nSpeaker: Shona Kerr\, VIKING GENES\, UK \nShort Q&A\n\n\n14:25\nTopic 5: Engaging with cohorts of young participants   \nSpeaker: Ana Cristina Santos\, Geração 21\, Portugal \nShort Q&A\n\n\n14:50\nTopic 6: Participant engagement in times of pandemic \nSpeaker:  Robin Flaig\, Clare Dolan and Rachel Edwards\, Generation Scotland\, UK \nShort Q&A\n\n\n15:15\nMapping participant engagement in European cohorts  \nSpeaker: Isabelle Budin-Ljøsne\, Norwegian Institute of Public Health and Biobank Norway\, Norway\n\n\n15:35\nQ&A + Exchange\n\n\n16:00\nClosure\n\n\n\n  \nWebsites of cohorts \nALSPAC: http://www.bristol.ac.uk/alspac/ \nBorn in Bradford: https://borninbradford.nhs.uk/ \nNINFEA: https://www.progettoninfea.it/index_en \nVIKING GENES: https://www.ed.ac.uk/viking \nGeração 21: https://www.geracao21.com/en/ \nGeneration Scotland: https://www.ed.ac.uk/generation-scotland \n  \nView the recordings for Day 1 and Day 2.
URL:https://dev2.bbmri-eric.eu/events/online-workshop-day-1-participant-engagement-in-longitudinal-population-studies-cohorts/
LOCATION:Online
CATEGORIES:BBMRI Events,Seminar,Webinar
ORGANIZER;CN="BBMRI-ERIC":MAILTO:contact@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20210928T100000
DTEND;TZID=Europe/Paris:20210928T111500
DTSTAMP:20260419T085317
CREATED:20210818T115015Z
LAST-MODIFIED:20210907T084059Z
UID:47999-1632823200-1632827700@dev2.bbmri-eric.eu
SUMMARY:3rd BBMRI.QM Newsroom
DESCRIPTION:Join BBMRI.QM\, our Quality Management team\, for the 3rd installation in our Newsroom series. This month features speakers from 3 of our National Nodes: \n\nBBMRI.no – Anne Jorunn Vikdal\nBBMRI.cy – Stella Antoniou\nBBMRI.de – Sabrina Schmitt\nGuest: Dunja Martin\n\n  \nAbout BBMRI.QM Newsroom \n“Get insights from the outside” – that is the motto for the consultation hours on quality-related topics in the field of biobanking and biomedical research and development. Sessions include an overview of current developments in quality management\, information about National Nodes (3 Nodes\, 3 minutes\, 3 slides)\, a guest speaker\, and exchange of ideas. Find more information here.
URL:https://dev2.bbmri-eric.eu/events/3rd-bbmri-qm-newsroom/
LOCATION:Online
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/jpeg:https://dev2.bbmri-eric.eu/wp-content/uploads/AdobeStock_268062196_Newsroom_web-scaled-e1669298651879.jpeg
ORGANIZER;CN="BBMRI.QM%20Newsroom":MAILTO:nadja.palko@bbmri-eric.eu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20210922T170000
DTEND;TZID=Europe/Paris:20210922T180000
DTSTAMP:20260419T085317
CREATED:20210920T091950Z
LAST-MODIFIED:20210920T091950Z
UID:49194-1632330000-1632333600@dev2.bbmri-eric.eu
SUMMARY:BBMRI-ERIC in Satellite Session on Biobanking within UNGA76 Science Summit
DESCRIPTION:Join BBMRI-ERIC and our Nodes BBMRI.at\, BBMRI.it and IARC\, as well as the International Cancer Institute of Kenya\, for a special satellite session on Biobanking and the Sustainable Development Goals\, wtihin the UN 76th General Assembly. \nSpeakers:\nProf. Kurt Zatloukal\, M.D.\, Medical University Graz\, Austria\nDr. Zisis Kozlakidis\, PhD MBA FLS\, IACR / WHO\nProf. Jens K. Habermann\, M.D.\, Ph.D.\, BBMRI-ERIC\nProf. Dr. Marialuisa Lavitrano\, University Milano Bicocca\, Italy\nProf. Fredrick Chite Asirwa\, M.D.\, International Cancer Institute\, Kenya \nProf. Habermann’s presentation will highlight how BBMRI-ERIC supports SDG 3 Ensure healthy lives and promote well-being for all at all ages by enabling (i) access to over 600 biobanks in our biobank Directory hosting more than 2\,500 collections with estimated >100\,000\,000 samples and associated data\, (ii) how this is facilitated by current and prospect IT solutions\, (iii) how quality measures are implemented and further developed\, (iv) how our ELSI experts across Europe support research and guide on matters ranging from data protection to incidental findings\, and (v) how we position our community’s services and research together with our stakeholders and partners in the overall EU research landscape in order to advance and implement precision medicine while fostering efficient yet competitive\, cutting-edge and value generating research within Europe and across the globe. \nFind out more and view all abstracts here: https://unga76sciencesummit.sched.com/event/mF17/ref-bb22-biobanking-to-support-the-sdgs-convened-by-the-biobanking-and-biomolecular-resources-research-infrastructure-bbmri  \nAttendance is free. Register here: https://www.eventbrite.be/e/unga76-science-summit-tickets-158308010521 \n 
URL:https://dev2.bbmri-eric.eu/events/bbmri-eric-in-satellite-session-on-biobanking-within-unga76-science-summit/
LOCATION:Online
CATEGORIES:External Events,Webinar
ATTACH;FMTTYPE=image/png:https://dev2.bbmri-eric.eu/wp-content/uploads/2021_09_UNGA76_ScienceSummit.png
ORGANIZER;CN="United%20Nations":MAILTO:declan.kirrane@iscintelligence.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20210913T140000
DTEND;TZID=Europe/Paris:20210913T153000
DTSTAMP:20260419T085317
CREATED:20210817T061928Z
LAST-MODIFIED:20211105T105615Z
UID:47949-1631541600-1631547000@dev2.bbmri-eric.eu
SUMMARY:Webinar: New ethical appraisal process for Horizon Europe. Key changes and expectations
DESCRIPTION:Speaker: Lisa Diependaele (Policy Officer – European Commission) \nFor all activities funded by the EU\, the ethical dimension is an integral part of research from beginning to end\, and ethical compliance is seen as pivotal to achieve real research excellence. Hence\, in addition to the scientific evaluation focusing on the scientific merit\, the quality of the management\, and the potential impact\, the Ethics Appraisal ensures that all research activities carried out under Horizon Europe are conducted in compliance with fundamental ethical principles. \nThis webinar will provide an overview of the Ethics Appraisal process for Horizon Europe\, the ethics issues that are evaluated during this procedure\, and offer general guidance on how to prepare the Ethics-Self-Assessment that has to be included in each application for funding. \n  \nPlease find the recording here. \nDownload a PDF of the presentation here. \n  \nDisclaimer: The ethics issues raised by activities proposed in applications submitted under Horizon Europe Calls and Programs must be assessed individually. The guidance offered during this webinar cannot anticipate any outcome of the ethics appraisal for any specific application. It is quite plausible that proposed activities on very similar topics or involving similar techniques are assessed differently\, in terms of the ethical issues raised\, their seriousness and/or complexity\, and how these ought to be addressed. The general guidance offered during this webinar therefore cannot create any new obligations on the European Commission or its Executive Agencies\, nor can the European Commission or any person acting on their behalf be made responsible for the use made of it.
URL:https://dev2.bbmri-eric.eu/events/webinar-new-ethical-appraisal-process-for-horizon-europe-key-changes-and-expectations/
LOCATION:Online
CATEGORIES:BBMRI Events,Webinar
ATTACH;FMTTYPE=image/jpeg:https://dev2.bbmri-eric.eu/wp-content/uploads/BBMRI-ERIC-ELSI-Webinar-Visual-v03-201808304-e1629189899710.jpg
ORGANIZER;CN="BBMRI-ERIC":MAILTO:contact@bbmri-eric.eu
END:VEVENT
END:VCALENDAR