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ELSI Helpdesk

If you have a question that concerns transnational research, contact us.

If your question concerns pharmaceutical regulatory affairs, please contact EATRIS, they will provide you with specific regulatory expertise.

If your question concerns a specific country, please contact one of our national contact points located in BBMRI Member Countries as listed below. They will provide you with country-specific expertise.

How does it work?

If you have emailed us at at BBMRI-ERIC, you will receive an automatic confirmation of receipt. Your enquiry will then be assessed and reviewed by our team. Given the customised nature of the ELSI Helpdesk, we may need to contact you in order to obtain further information. Your enquiry is tracked from beginning to end.

Given that different countries have different regulatory frameworks, we draw from local expert knowledge in order to effectively address your enquiry. We may also connect you to a locally based organisation with the relevant expertise.

If you have chosen to contact a listed contact point within the ELSI Helpdesk Network, your enquiry will be processed in accordance with their respective operating procedures.


Who is it for?

The service is available to researchers and biobanks located in Member and Observer Countries of BBMRI-ERIC, as well as any research infrastructures working in the field of life sciences.

What happens after we respond?

Much of the information generated from the ELSI Helpdesk will also be beneficial to the wider scientific community.

As a publicly funded research infrastructure, it is important that any knowledge generated is shared. Therefore, responses issued through the ELSI Helpdesk may be used to feed into the ELSI Knowledge Base, an open access resource platform.

Any personal and confidential details will of course be removed.


What is it not?

Any information provided by the ELSI Helpdesk is not legal advice. As a research infrastructure, BBMRI-ERIC provides a public service by providing expertise and sharing knowledge regarding ELSI issues for the use and benefit of the biobanking community.

Information offered by the ELSI Helpdesk represents one view on the particular ELSI issue raised. It is not intended and should not be taken as the only view on the respective matter.

Professional legal advice should always be obtained before taking or refraining from any action as a result of information provided by the ELSI Helpdesk.



Professor Radka Kaneva, PhD
Executive Manager,
Molecular Medicine Center
Medical University


Dr Georgia Charalambidou, PhD
ELSI Special Scientist
Center of Excellence in Biobanking and Biomedical Research


Dr Liis Leitsalu
Estonian Genome Center, Institute of Genomics
University of Tartu


German Biobank Node -


To be determined


Renata Laučiuvienė
Lawyer, Data Protection Officer
National Cancer Institute


Dr Gillian Martin
Chair, Faculty of Arts Research Ethics Committee
University of Malta

Dr Bridget Ellul
Member Research Ethics Committee, Faculty of Medicine & Surgery
University of Malta
Member Health Ethics Committee


Helpdesk ELSI
Biobank Norway


Dr Pilar Nicolás
Senior Research Fellow


Sabine Bavamian, PhD
Chief Scientific Officer
Swiss Biobanking Platform

The Netherlands

ELSI Servicedesk
BBMRI.NL, The Netherlands Cancer Institute, COREON-Federa


Czech Republic

Mgr. Radek Halouzka
Chief Legal Officer
Masaryk Memorial Cancer Institute (MMCI)


Tom Southerington
General Counsel
Finnish Biobank Cooperative – FINBB

Sirpa Soini, LLM
Biobank Director
THL Biobank
The Finnish Institute for Health and Welfare


Dr Olga Tzortzatou
IP & Data Consultant
Biomedical Research Foundation of the Academy of Athens


IARC Biobank (IBB)



Dr Signe Mezinska
Associate Professor, Faculty of Medicine
Senior Researcher, Institute of Clinical and Preventive Medicine
University of Latvia


Dr Jakub Pawlikowski
Associate Professor
Department of Human Ethics and Philosophy
Medical University of Lublin

Dr Dorota Krekora-Zajac
Legal Counsel
Assistant Professor at the Department of Comparative Civil Law
University of Warsaw


Professor Vesna Rijavec, PhD
Faculty of Law Maribor


ELSI Helpdesk
Biobank Sweden


To be determined

Additional Information

 The ELSI Helpdesk was conceptualised with funds from ADOPT BBMRI-ERIC and CORBEL, projects that received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreements No 676550 and No 654248, respectively

The website was co-funded within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550.
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