New Publications from CORBEL

New publications in the CORBEL context

In the context of the CORBEL work package on Cross-Infrastructure Medical Research, three articles were recently published: the outcomes of a survey among patients and citizen groups in Italy, investigating their opinion about the issue of sharing individual participant data from clinical studies, were published in BMJ Open (‘Sharing individual participant data from clinical studies: a cross-sectional online survey among Italian patient and citizen groups’). Work conducted towards the identification of predictive biomarkers for the early stages of pancreatic cancer by making use of biobanked samples from five large European population cohorts was described in an article on bioRxiv (‘Search for early pancreatic cancer blood biomarkers in five European prospective population biobanks using metabolomics’). With publishing an ‘Evaluation of repositories for sharing individual-participant data from clinical studies’, CORBEL partners made an important contribution to the implementation of clinical study data sharing: they analysed existing data repositories using an indicator set to capture the maturity of the repositories’ procedures and their suitability for the hosting of IPD. Their analysis gives an overview about the currently available repositories and can actually help researchers to find a suitable repository for their datasets.