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European Biobank Week Roadshow – Paediatric Biobanking and Minor Engagement – Rome, Italy
13 October 2022 @ 09:00 - 14 October 2022 @ 18:00
CET €85Paediatric Biobanking and Minor Engagement – an interactive workshop
The second stop of our EBW22 Roadshow will be in Rome (Italy), 13-14 October.
ESBB and BBMRI-ERIC organise this #EBW22 Roadshow stop in partnership with the BBMRI ERIC Stakeholder Forum Patient Pillar, BBMRI.it, the Research Translational (IRCCS) Paediatric Bambino Gesù Hospital, and the paediatric network IDEA.
Paediatric (research) biobanking is a European priority asking for a scientific and Ethical-Legal-Societal-ELS shift within a Responsible Research & Innovation – RRI framework. Accordingly, our critical starting point will be an overall view of European commitment to paediatric research and healthcare and an in-depth exchange on good practices and priorities of various actors to raise awareness, facilitate assent and consenting processes, and improve engagement. Promoting practical solutions, we will address challenges of biobanking with children (earlier, over time, and following up), such as:
- How empowering new generations makes better research and a better research experience?
- Which tools to use to inform and increase the minor’s understanding?
- By whom is the child’s capacity (to understand, to assent) assessed?
- How to engage minors and their parents (guardians) over time and recognize them as active research participants?
Booking and further information
See the programme and register via the ESBB website today, seats are limited!
As a practical recommendation: October is the high tourist season in Rome; book in advance – the sooner the better.
You will find the information notice specific to the data processing for the organization of the EBW Roadshow here.
Please also find our privacy statements here: ESBB, BBMRI-ERIC. For more information on the Eventbrite Privacy Statement click here.
You will find the information notice specific to the data processing for the organization of the EBW Roadshow here.
